Work With Me
Bringing the patient voice into the rooms where healthcare is shaped
I help research teams, health systems, and healthcare organizations build work that reflects the people it's meant to serve. I bring lived experience as a patient with a rare disease, training in information management, and hands-on experience partnering on research and care improvement.
How I Can Help
Patient Engagement Consulting
For teams who want patient input that's meaningful, not a checkbox. I help you design engagement plans, review patient-facing materials for clarity and trust, and find where information breaks down for patients, including in tools that use AI.
Good fit for: health systems, research teams, digital health companies, patient advocacy organizations
Patient Research Partner & Advisory Roles
I partner with research teams from the start, helping shape research questions, review study materials, and plan how findings are shared back with patients and communities. I'm also available for advisory boards and steering committees.
Good fit for: PCORI-funded projects, rare disease and vasculitis research, patient-centered outcomes research
Speaking & Workshops
Talks and workshops that help audiences see healthcare through the eyes of the people who experience it.
Talk topics include:
Patient partnership: moving from input to real collaboration
Diagnostic delay in rare disease and how information fails patients
AI in healthcare: what patients need to know and what systems owe them
Trust, power, and the architecture of care
Good fit for: conferences, grand rounds, ethics forums, universities, patient education events, staff training
Experience
Patient Research Partner, TAK-IMPACT study, with the Vasculitis Patient-Powered Research Network (VPPRN)
Credentialed PCORI Ambassador
Patient Advisor, Patient & Family Centered Care Committee, UW Medicine
Keynote Speaker, UW Medicine Harborview Ethics Forum 2026
Author, The Informed Patient's Guide to AI
2026 Princeton P3 Scholar
MS in Information Management, University of Washington
Let's Talk
Every project is different, so I tailor each engagement to your goals, timeline, and budget. Tell me what you're working on and we'll find the right fit.